Landon, will be 5 years old on January 19, 2014. Through the expanded newborn screening he was diagnosed with non cardiac vlcad. Landon presents as severely hypoglycemic, and has a systolic heart murmur that has appeared in the last year even though he is 'non cardiac.' He is the only known person in the world with his DNA mutations that cause his vlcad and Mitochondrial Disease. Due to this unknown mutation, no one knows exactly how he will present, or how long Landon will live. He's the sweetest soul you will ever meet. He loves to swim, do gymnastics and soccer, as well as spend time with his little sister and extended family.
As Landon's parents we want to accomplish a greater public awareness of Mitochondrial Disease, and its implications. We also want to help get the word out to doctors and hospitals, as well as the public on diagnosis, prevalence, and treatment of Mitochondrial Diseases. We aim to keep families from having to take the same painstaking journey that we have had to endure. Thank you so much for your support and to make a donation to Landon's Love Research Fund for Mitochondrial Research click the donate button above.
Love,
Landon's parents