Participate in Research

At TGen, we are at the forefront of precision medicine, dedicated to uncovering the role that genes play in our health. Our genetic makeup influences many aspects of who we are—from our physical traits to how we respond to disease and treatment. By studying both healthy individuals and those affected by disease, we aim to better understand these connections and improve outcomes for everyone.

We invite you to participate in our research studies, which may involve simple tasks like completing a memory quiz or donating a saliva sample from your pet. Some studies are open to both healthy volunteers and individuals with specific conditions. Your participation is voluntary and helps us make meaningful progress in our work.

Explore our current studies and consider sharing them with others who might be interested. Thank you for supporting our mission and contributing to the future of medical research.

Current Studies

Participation in our research studies is voluntary. We welcome both patients and healthy volunteers to help further our research.

Thank you for being a part of our community of 'Citizen Scientists.'

Center's Tuberous Sclerosis

Dr. Vinodh Narayanan at TGen's Center for Rare Childhood Disorders is conducting a study on genetic differences in disease severity for Tuberous Sclerosis Complex (TSC). We are looking for families where the parent has a mild form of the disease and the child has severe neurological disease.

MindCrowd Online Memory Test

You can make a difference. Participate in our collaborative effort to help us learn more about brain-related diseases.

MindCrowd Mobile Lab Schedule

MindCrowd Memory Test What to ExpectMindCrowd brain game Scent detection activityGrip strength testingBody composition measurementsA blood pressure measurementA blood collection (a few drops of blood, similar to a finger prick)A scan from our mobile magnetic resonance imaging (MRI) scanner - about 40-45 minsA picture of your eye will be taken with our portable retinal scanner Our MRI is not intended to diagnose any medical problems and is meant to gather data for our research.

Diffuse Intrinsic Pontine Glioma (DIPG)

Diffuse Intrinsic Pontine Glioma. As with organ donation, advance planning can eliminate logistical concerns and soften the emotional impact of this decision. Other families of DIPG patients have bravely planned ahead to donate their child’s tumor tissue upon their passing. From this gift, our scientists can conduct genetic analyses to increase understanding of DIPG.

Multiple System Atrophy

You are one click away from the Multiple System Atrophy (MSA) Research Registry page. By completing the MSA Research Registry page you give the Translational Genomics Research Institute (TGen), permission to contact you with more information related to research, and research participation. It is important to know that you are not enrolling in a research study at this time; you are enrolling into a registry database. If/when you become eligible for a study, we will ask you to sign a consent form that outlines in detail the nature of the research study, including any potential risks and benefits.

TGen Volunteer Registry

TGen Volunteer Registry. The Translational Genomics Research Institute (TGen) has created a Volunteer Registry in an effort to provide a platform for people who want to contribute to our science. TGen is frequently in need of study volunteers and participants to provide samples such as blood, saliva, or urine that can be used as comparison samples. These comparison samples are utilized to further our scientific understanding of different diseases.